In the Intermediate-Risk column Glen has the * Cytogenetic Deletion 13 or hypodiploidy, and in the High-Risk column he has the * FISH, Del 17p. This puts Glen in less that 1% of all myeloma patients. THIS, is why they are stating that he is "too high-risk" and does not qualify for the second SCT that he needs to prolong his life.
FRUSTRATING to say the least.
We submitted our request for arbitation yesterday. Hopefully that will be scheduled soon.
While life is a challenge with cancer on a daily basis, today I send prayers for all those who are being affected by Hurrican Irene. May God protect, guide and direct you during this time.
Keep Strong,
Vannette
Let me know if you need help finding examples of high risk myeloma patients who have benefited from transplant... I'm sure we can!
ReplyDeleteAre you sharing this with all by hitting the "tweet" button? Tweets are starting to come-in after I shared your situation with my readers this morning. Good luck! Pat
Praying your arbitration date is scheduled soon, and hopefully with Pat's help you can gather more ammunition to fight this denial. Unbelievable...don't lose hope!!
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